GCRF Golf Tournament – July 9th 2022 – John Day, Oregon
Support the GIST Research and play a round of golf this summer in beautiful John Day, Oregon! See this flyer for details and sign up now!
We want to extend our sincere gratitude to everyone who participated in the Heinrich Lab’s 2020 GCRF Virtual Fundraiser Walk in Portland, Oregon. Although we could not reunite in person to walk with many patients, families, and friends, a few of us were able to gather to show our support for GIST research. We especially want to express our deep appreciation to the GCRF community for their generous donation of $75,000 this year. With your amazing fundraising efforts, we are able to continue to work hard to find a cure for this devastating disease. Check out the photos and videos of our walk with Dr. Michael Heinrich!
Join the GIST Cancer Research Fund (GCRF) for a virtual fundraiser walk
Oct 17-18th, 2020
The GCRF is a GIST patient-run non-profit (501c3) that has supported the GIST basic research being performed in the laboratory of Dr. Michael Heinrich here at OHSU, as well as numerous other GIST research programs around the US, for nearly two decades. The funds donated to research from the GCRF fund research for improving the care of GIST patients. Without the support of the GCRF, the immense progress that has been made in improving GIST patient care at OHSU would not have been possible. Please invite family and friends to participate in this virtual walk. Choose you own date and distance for the walk and recruit sponsors.
Donations can be made by credit card at gistinfo.org or checks payable to GCRF can be sent to:
1630 Coraltree Place
San Jose, CA 95131
On Saturday, June 22nd, The Life Raft Group hosted its annual GIST Day of Learning event at OHSU in Portland, Oregon. Attendees gathered to learn about the latest GIST research and get support. Some participated in the GIST Do It Walk across the Tillikum Crossing bridge over the Willamette River. Speakers presented new information on GIST treatments, immunotherapy, clinical trials, and SDH-deficient GIST. After a question and answer session, everyone gathered on the rooftop patio to mingle.
The Heinrich Lab would like to thank the Life Raft Group and all of the organizers, speakers, patients, and participants for joining us at this special event. It’s always a joy to see familiar faces and connect over our common goal to find a cure for GIST.
Each year, we look forward to the annual GIST Cancer Research Fund Conference and Luncheon at OHSU’s Knight Cancer Institute, not only to share insight about the latest treatments with patients and their families, but to reconnect with each other. In addition to working toward finding a cure for GIST, it’s so important to all of us in the Heinrich Lab to foster a community of collaboration and education for researchers, physicians, patients, and families. We want to express our sincere gratitude to the GCRF for another very generous donation to our efforts to find a cure for this devastating disease.
This year’s conference was highlighted by the special presentation of a cupcake from Dr. Brian Druker to Tania Stutman, in celebration of her 70th birthday. Mrs. Stutman was one of the first GIST patients to take Gleevec nearly 20 years ago, which Dr. Druker developed. We all sang “Happy Birthday” to honor this amazing woman and we want to thank her for everything she’s done for other GIST patients.
Please be sure to watch our special Lab Tour video from last year and
see below for links to the speakers’ presentations:
- Dr. Michael Heinrich – Treatment of imatinib-resistant GIST: the next generation
- Dr. Lillian Klug – Modeling PDGFrA D842V GIST
- Jason Kent, Graduate Student – Deep Mutational Screening to Identify SDH Variants Associated with GIST
- Tracy Havnaer, RN, BSN – How to Find and Participate in a GIST clinical trial
- Joseph Bubalo, PharmD, BCPS, BCOP – Taking a Walk on the Wild Side: Nutritional and Natural Supplements and GIST Therapy
On Saturday, April 27th, Dr. Heinrich participated in the Vancouver GIST Day of Learning, sponsored by the GIST Sarcoma Life Raft Group Canada. He spoke about the “Development of the Next Generation of GIST Treatments” to GIST patients, family, caregivers and healthcare professionals. These events provide an essential educational and support resource for people who have GIST.
GDOL is a free one day event to help patients and caregivers learn more about this rare cancer, find support, and enhance their knowledge base to help them navigate their cancer journey.
The Life Raft Group has a simple focus: to cure a form of cancer — GIST — and to help those living with it until then. To do this, the Life Raft Group focuses on three key areas: research, patient support & education, and advocacy, which lay the foundation of our mission to ensure the survival of GIST patients through a comprehensive approach connecting individual patients’ needs, the worldwide community of GIST advocates and the global health and research environment.